Rare Diseases SA
Rare Diseases South Africa is a registered Non-Profit Organization assisting all patients impacted by rare diseases to access life-saving treatment and supportive care for improved quality of life.
Established in 2013 by Kelly du Plessis from personal need on the diagnosis of her son with Pompe disease. RDSA provides empowerment through patient navigation, advocacy and community engagement.
VISION: A South Africa where those impacted by Rare Diseases access life-saving treatment and supportive care for improved quality of life.
MISSION: To advocate and facilitate engagement between those with the ability to prevent, intervene, treat and provide supportive care for those impacted by rare diseases.
VALUES AND PRINCIPLES: Equality, Care, Dignity and Empowerment.